The Road of My Life
Picture this
Harsh light, darkened hope
Death just missed
Somehow we cope
The nurse coos
Machines hum, needles prick
Sisters cries, turning blue
Memories take me on a trip
Don’t be scared
We toughed it out
Milestones shared
State to state we traveled about
My heart is strong
I’m trying to speak
Must be something wrong
My body is weak
Other kids learn together
Friends play in groups
Teachers expectations keep me tethered
I’m jumping through hoops
“Sit still look at me
Try harder to listen”
My mind begs to be free
Talking is my mission
Slivers of hope
Mom doing it all
Outside of her scope
Tears sometimes fall
It doesn’t take too long
To give up on faith
They think I don’t belong
I’m just taking up space
Back in the hospital now
This time for mom
She’s sick and I don’t get how
My heart feels like a bomb
They’re trying to save her
Time is ticking down
The doctors aren’t sure
Wish it was me in a gown
Others don’t know the way I feel
I can’t say that I’m sad
To them my understandings not real
It makes me so mad
The heavens sent a thought
He knows how to spell
Communication can be taught
“No way in hell”
Letter by letter
Giving it my all
Slowly getting better
Hope is standing tall
Talking through a board
Showing who I am
Making friends galore
It so happens that I can
Life is a winding road
Fifteen years of hope
Finally the road glows
Next chapter will be dope
